In this episode of The Healing Journey, the host provides updates on the Thrive Everywhere platform and shares their vision for transforming the healthcare experience. They then pivot to an inspiring conversation with Dr. Sonia Vallabh, a scientist at the Broad Institute of MIT and Harvard. Sonia shares her deeply personal journey from discovering her mother's genetic prion disease, CJD, to learning that she too carries the genetic mutation, and her subsequent transition from law to science in a relentless quest to find a cure. The episode delves into the challenges of rare disease research, the importance of early intervention, and the hopeful advances in treatment development. The host emphasizes Sonia's dedication and the impact of the community in driving forward the understanding and treatment of CJD. The episode closes with a teaser for the season finale featuring metaphysical counselor Ray Catania.

00:00 Introduction and Updates on Thrive Everywhere

01:13 The Mission Behind Thrive Everywhere

02:45 Health Insurance and Impact Health Share

03:32 Upcoming Features and Season Finale

04:56 Catching Up with Adam

05:53 Advocacy and CJD Foundation

08:52 Interview with Dr. Sonia Vallabh

10:53 Sonia's Journey and Genetic Testing

21:04 Challenges and Decisions in Genetic Testing

31:01 Emerging Research in Prion Disease

31:34 The Importance of Prevention

32:15 Challenges in Clinical Trials

34:45 Developing New Therapies

36:41 The Role of the Community

40:17 Personal Reflections and Future Hopes

45:18 Support and Awareness

51:24 Conclusion and Next Steps

Musical Intro (Comfort) and Outro (Red Punch, Green Punch) by Carbon Leaf

Voice Intro and Outro by Marcel Brown, my IT guy with a sexy voice.

Executive Producer: Jake Sebok

Guest Testimonial by Adam Bouse

https://www.optimism.coach

adam@optimism.coach

CJD Resources

https://secure.qgiv.com/for/advocd/event/advoc/

https://www.facebook.com/share/g/17oerMMgfT/

https://www.broadinstitute.org/bios/sonia-vallabh

In this heartfelt episode of 'The Healing Journey,' the host discusses the rare and devastating condition known as Creutzfeldt-Jakob Disease (CJD). The episode features a deeply personal interview with Adam Bouse, who shares the harrowing experience of his wife's rapid decline and passing from CJD. As Adam recounts the swift and devastating impact of the disease, he emphasizes the importance of community support, emotional resilience, and advocacy. This episode not only provides an educational overview of CJD but also delves into the emotional and practical challenges faced by families navigating such profound loss. Listeners are encouraged to pause, reflect, and honor the stories of those affected by this disease, while also finding hope in ongoing scientific efforts to find a cure.

00:00 Introduction and Personal Connection

02:20 Understanding Creutzfeldt-Jakob Disease (CJD)

04:33 Personal Experience with CJD

06:04 The Impact of CJD on Families

10:39 Interview with Adam Baus: A Personal Story

38:09 Understanding Stacey's Unique Dementia Symptoms

39:09 Navigating Hospice Care

40:59 Making End-of-Life Decisions

41:46 Support Systems and Community Help

43:27 The Role of Hospice and Family Support

51:26 Emotional Intelligence and Coping

57:15 Grief and Community Support

01:04:17 Fundraising and Hope for a Cure

01:13:17 Honoring Stacey and Final Reflections

Musical Intro (Comfort) and Outro (Red Punch, Green Punch) by Carbon Leaf

Voice Intro and Outro by Marcel Brown, my IT guy with a sexy voice.

Executive Producer: Jake Sebok