Guest Testimonial by Adam Bouse

https://www.optimism.coach

adam@optimism.coach

CJD Resources

https://secure.qgiv.com/for/advocd/event/advoc/

https://www.facebook.com/share/g/17oerMMgfT/

https://www.broadinstitute.org/bios/sonia-vallabh

In this heartfelt episode of 'The Healing Journey,' the host discusses the rare and devastating condition known as Creutzfeldt-Jakob Disease (CJD). The episode features a deeply personal interview with Adam Bouse, who shares the harrowing experience of his wife's rapid decline and passing from CJD. As Adam recounts the swift and devastating impact of the disease, he emphasizes the importance of community support, emotional resilience, and advocacy. This episode not only provides an educational overview of CJD but also delves into the emotional and practical challenges faced by families navigating such profound loss. Listeners are encouraged to pause, reflect, and honor the stories of those affected by this disease, while also finding hope in ongoing scientific efforts to find a cure.

00:00 Introduction and Personal Connection

02:20 Understanding Creutzfeldt-Jakob Disease (CJD)

04:33 Personal Experience with CJD

06:04 The Impact of CJD on Families

10:39 Interview with Adam Baus: A Personal Story

38:09 Understanding Stacey's Unique Dementia Symptoms

39:09 Navigating Hospice Care

40:59 Making End-of-Life Decisions

41:46 Support Systems and Community Help

43:27 The Role of Hospice and Family Support

51:26 Emotional Intelligence and Coping

57:15 Grief and Community Support

01:04:17 Fundraising and Hope for a Cure

01:13:17 Honoring Stacey and Final Reflections

Musical Intro (Comfort) and Outro (Red Punch, Green Punch) by Carbon Leaf

Voice Intro and Outro by Marcel Brown, my IT guy with a sexy voice.

Executive Producer: Jake Sebok