I often get emails from people I know within the celiac community regarding interesting people or medical professionals, who might make good guests for a podcast episode. It was during a conversation with Ellen Bayens of theceliacscene.com when Avery’s name came up. Ellen brought her to our attention recently. When I contacted Avery to record a conversation, we had to wait until she’d finished her final exams – that was a new one for me – and I was excited to hear her story and get the perspective of a high school student on dealing with celiac disease.

Avery had the idea of doing something to benefit the kids in our celiac community, but it took her years to formulate what that would look like. She has recently launched Celiac Chat which is an online mentoring platform to allow kids to speak to other kids, or adults who relate to their issues.

You can find out more, or fill in an application to be a mentee or a mentor at –

celiacchat.org

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

After taking some time off to recuperate from knee surgery, I’m back speaking with Ellen Bayens of theceliacscene.com for the beginning of May to review some of the articles she brought to our attention over the past month.

If you’re interested in the Irish Tour, best make your inquiry quickly, as spots are limited – check out the link below.

Ellen and I spoke about an article written by a reporter in upstate New York regarding his experience eating gluten free in local restaurants. I found he was able to thread together a story that many of us can relate to – but he was able to articulate it so much better than I can.

Ellen shared with us the story of a home-based bakery on Vancouver Island with a difference. She also shares some great photos of his creations. Staying on the food theme, Ellen has provided us a link to a free recipe booklet from Corn Thins – I didn’t realize they were so versatile!

CELIAC SCENE NEWS

• Take a Gluten-Free Tour of the Emerald Isle
• Reporter Navigates the World of Gluten-Free Dining
• Be Amazed by the Story Behind Nathan's Gluten-Free Bakery
• Corn Thin-Spiration Gluten-Free Recipe Resource

SELENA RD, INSTAGRAM CORNER - celiac_dietitian

• Celiac Dietitian at Your Finger Tips - Tuesday Q & A
• How to Manage a 'Shared' Household
• Work with Selena

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of April, which for me means that I get to chat with my friend Ellen Bayens of theceliacscene.com about interesting articles and studies she has brought to our attention over the past month. I had to record with Ellen prior to end of the March as I was preparing for knee surgery. Ellen kept posting and you can keep up with her work by subscribing to her monthly newsletter through her website.

Ellen and I both had copies of the recent booklet produced by Celiac Canada with the preliminary results from their recent survey. There is so much information in these numbers and the analysts have only scratched the surface. You can read these initial results or download the booklet at celiac.ca.

Both Ellen and I felt my recent conversation with Linda Sills regarding retirement and long-term care for her celiac mother was concerning and something we should all be concerned about for our families and ourselves. Ellen mentioned a previous a podcast I recorded with Mike Rose about choosing safe retirement living – you can listen at - https://acanadianceliacpodcast.libsyn.com/ep-168-retirement-living-gluten-free. As well Ellen wrote an article about Mike which you can read here - https://theceliacscene.com/celiac-crusader-tackles-challenges-residential-living/

Ellen told us about a new online mentoring program for kids and teens that is being started – you can find out more here - Introducing Celiac Chat - An Online Mentorship Program for Kid & Teens and hopefully I will speak with Avery for a podcast in the near future.

Villous atrophy is a term that many of us know from our diagnosis, but Ellen was able to show me an article that listed other conditions that may cause villous atrophy – and here I was thinking it was unique to Celiac Disease. Other Conditions that May Cause Villous Atrophy

On a social media note Ellen told us of a situation at a local restaurant in Victoria that recently decided to remove a popular gluten free item from their menu. This was of course unfortunate, but the negative comments on social media that ensued were somewhat over-the-top. Ellen and I comment on the issues.

I mention that I recently attended a virtual class from Cinde, the everydayglutenfreegourmet.ca. I highly recommend these classes as we can all learn to make more gluten free options.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

This episode is a follow up to Episode 298 when I attended an event called The State of Celiac Disease in Canada during the last week of February. Celiac Canada held the event to present the preliminary results of the recent national survey.

During the event, Melissa Secord the Executive Director of Celiac Canada spoke. I had more questions for Melissa, so I invited her on to this episode of the Podcast. Now that the preliminary results of the survey were being evaluated, I wanted to know more about what the results meant to Celiac Canada, and how they were going to use what they were learning to advance their efforts on our behalf.

Also, at the event in February, a woman by the name of Linda Sills took to the podium to tell her family’s story of dealing with care homes for her elderly mother. Linda gave an emotional talk, and again, there was more I wanted to know. The prospect of choosing a long-term care home for a loved one or yourself, is daunting, but unfortunately, for many of us, it’s a fact of life. I was grateful that Linda trusted me with her moving story and allowed me to dig a bit deeper into how and why. This was a powerful conversation, and one you may want to refer for others to listen to. Thanks Linda, for sharing in such a personal way.

You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at -

https://www.celiac.ca/state-of-celiac/

You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at - https://www.youtube.com/watch?v=I__T36eeNd8&ab_channel=CeliacCanada

Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.

https://www.youtube.com/c/CanadianCeliacAssociation

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I recently realized that although many of the people I speak with have been involved in the celiac and gluten free community for many years, I wasn’t well acquainted with the families of the newly diagnosed. When I operated my bakery, I was often the first celiac that people met after their diagnosis – it appears doctors were sending them my way. Since closing the bakery, I’ve built on my knowledge, but I must admit, I need a new perspective on what it’s like to raise a celiac child today.

Ellen Bayens (theceliacscene.com) was kind enough to introduce me to Kelsea. She is a mom of a busy 10-year-old boy and can clearly remember what life was like before, during and after the diagnosis. Our conversation centres around the diagnosis and how the entire family was affected. I hope to have Kelsea on again to explore more aspects of being a parent to a celiac child. Hopefully, I’ll speak with her son at some point as well.

Sue’s Websites and Social Media

Podcast https://glutenfreeweighin.libsyn.com

Canadian Celiac Podcast Blog – https://www.acanadianceliacblog.com

Instagram - @glutenfreeweighin

Email – GlutenFreeWeighIn@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Other Podcast – A Canadian Celiac Podcast - https://acanadianceliacpodcast.libsyn.com

During the last week of February, Celiac Canada held an event called The State of Celiac Disease in Canada, during which the preliminary results of the recent national survey were presented. I was invited to bring my podcast equipment to the event and record conversations with some of those involved. This episode was recorded at the event, so you will notice some distortion and background noise in the audio – there was lots going on.

I had the pleasure of speaking with James King. James has been a guest on the podcast previously, but this conversation was all about survey results. James is an analyst who is able to make sense of the numbers. He shares some of his insights into survey results with us. I also spoke to Registered Dietician Caleigh McAulay from Celiac Canada about her role in the formulation of the survey and how the results might help her help us.

You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at -

https://www.celiac.ca/state-of-celiac/

You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at -

https://www.youtube.com/watch?v=I__T36eeNd8&ab_channel=CeliacCanada

Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.

https://www.youtube.com/c/CanadianCeliacAssociation

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Diane Bertrand from a company called English Bay. I wasn’t familiar with English Bay, and that’s because they produce foods for other companies. They do, however maintain a gluten free food manufacturing facility and when the owners of Kinnikinnick were looking for a good time to retire, after all the difficulties of running a specialized food business during the pandemic, English Bay seemed like the perfect fit.

Diane fills us in on the plans for Kinnikinnick going forward, and it’s comforting to know that not only will things ramp up to get more product into stores, but the products themselves will stay the same including the “free from” identification. Diane and the team from Kinnikinnick have lots of work to do, but it’s something they have the resources and excitement for.

You can find out more on the website – https://www.kinnikinnick.com/

research in the Store Finder - https://www.kinnikinnick.com/store-finder

follow the blog at – https://www.kinnikinnick.com/blog

check out the Frequently Asked Questions – https://www.kinnikinnick.com/faq-s

follow them on Facebook at – https://www.facebook.com/KinnikinnickGF/

and Instagram at –https://www.instagram.com/kinnikinnickgf/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram - @suesgfbaking

YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com