In this episode, we are joined by Wes Michael, the founder and president of Rare Patient Voice, who discusses the importance of including patient voices in healthcare decisions.

Rare Patient Voice connects patients with researchers and companies for interviews and studies, compensating them for their time and insights. Wes shares his background in market research and the experience that led him to create Rare Patient Voice.

The discussion highlights the shift towards patient-centricity, the unique experiences of patients with both rare and non-rare conditions, and the challenges faced by caregivers.

Wes also explains the various ways patients can participate, emphasising the importance of reaching diverse populations and ensuring inclusivity in research. Interested individuals are encouraged to visit the Rare Patient Voice website to learn more and get involved. You can also find them on Facebook and LinkedIn.

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Friend of the show, Amy Wescott, a children's occupational therapist living with juvenile idiopathic arthritis, returns to the Chronic Pain Club after her first interview with us went on to receive thousands of views.

We discuss Amy's journey to becoming an occupational therapist [12:16], her experience living with arthritis [15:48], the challenges she faced [22:18], and how her personal experience has influenced her career [27:01]. Amy also talks about occupational therapy [34:36], her research [39:31], and the Children's Chronic Arthritis Association (CCAA) [48:15].

Follow the HOST:⁠⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠

Join our Online Peer Support Community and Discord server here:⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠YouTube ⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Angela Laborde, who lives with psoriatic arthritis, among other conditions, returns to the show to share with us why she volunteers and plays an active role in peer support communities online.

In Part 1 (https://open.spotify.com/episode/5KH7EINV5kCI4fK618ngX7?si=3afPdtoRQm-zAkqRkm0hag), we discussed Angela's journey to diagnosis with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has had on her.

In this bonus second episode, we discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.

Follow our GUEST:⁠https://www.instagram.com/a_schiro/⁠

Follow the HOST:⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠

Join our Online Peer Support Community and Discord server here:⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on⁠⁠⁠ YouTube ⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Filmed live between World Arthritis Day and World Psoriasis Day, we are joined by special guest Angela Laborde, an American who lives with psoriatic arthritis, among other conditions.

In Part 1, we discuss Angela's diagnosis journey with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has on her. We also touch upon the vital role that community and advocacy play in her life now.

Come back for Part 2, where we will also discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: https://www.instagram.com/a_schiro/

Follow the HOST:⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠

Join our Online Peer Support Community and Discord server here:⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on⁠⁠YouTube ⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Dr Catherine O'Leary, a Clinical Psychologist and person living with psoriasis, joins the Chronic Pain Club Talk Show to provide invaluable insight into the psychology of psoriasis.

With her extensive training in Cognitive Behavioural Therapy, Family Therapy and Interpersonal Psychotherapy, Catherine brings a wealth of expertise to our discussion.

We learn about her personal experiences living with psoriasis, her work as a clinical psychologist, and techniques you can use to manage psoriasis. We also discuss her new book, Coping with Psoriasis, and how she hopes it can help.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: https://copingwithpsoriasis.com

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

In this episode, we are joined by Angela Gibbons, patient advocate, research partner and founder of The HS Support Network UK and Ireland.

We explore her journey of multiple chronic illnesses and how she went from "not telling a soul" to gradually seeking opportunities for change.

Today, Angela is involved in numerous national and international projects and has set up a charity supporting those with the often overlooked and misunderstood condition of hidradenitis suppurativa.

Like so many, we'll discuss how this pursuit of advocacy and action is part of Angela's coping strategy and how you can get involved.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Instagram: https://www.instagram.com/the_hs_support_network Facebook: https://www.facebook.com/profile.php?id=100087939407891

Follow the HOST: Socials & Links: ⁠https://linktr.ee/Joelvsarthritis⁠

Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX

Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

In this episode, we learn about the importance of antimicrobial resistance (AMR) and how to combat this growing global health threat.

Vanessa Carter holds the esteemed titles of Antimicrobial Resistance Patient Survivor, Founder and Executive Director of The AMR Narrative, and Chair of the WHO Taskforce of AMR Survivors.

After a car accident required ten years of facial reconstruction, three of which were spent fighting resistant infections, such as MRSA, Osteomyelitis (bone infection) and surgical site infections, Vanessa emerged with a facial disfigurement and the challenge of learning about what it meant to live with Antimicrobial Resistance (AMR).

Hear about Vanessa's journey to advocacy and the challenges facing us with antimicrobial resistance.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST:

Facebook: https://www.facebook.com/theAMRnarrative

Instagram: https://instagram.com/theAMRnarrative

Twitter/X: https://twitter.com/thramrnarrative

Website: https://amrnarrative.org/

Follow the HOST:

Instagram: https://instagram.com/joelvsarthritis

Facebook: https://www.facebook.com/joelvsarthritis

Twitter/X: https://twitter.com/joelvsarthritis

Twitch: https://twitch.tv/joelvsarthritis

TikTok: https://www.tiktok.com/@joelvsarthritis

All Links: https://linktr.ee/Joelvsarthritis

Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX

Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Here is a quick update from me as we share the exciting news that The Joel Nelson Podcast is now part of the Spotify family!

Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

Follow Joel:

Instagram: ⁠https://instagram.com/joelvsarthritis⁠

Facebook: ⁠https://www.facebook.com/joelvsarthritis⁠

Twitch: ⁠https://twitch.tv/joelvsarthritis⁠

All Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.