What associations do you get when you hear the word "headache"?

Cluster Headache is actually not a headache, but a severe serious neurological pain condition.

When the word "headache" is baked into the diagnosis (cluster headache) it can lead to several negative consequences on many levels.

The name clusterHEADACHE leads to the severity being underestimated and the suffering being trivialized.

This is the theme for todays episode.

Please feel free to message me on instagram if you have thoughts, opinions, ideas or suggestions.

Hva tenker du når du hører ordet hodepine?

Klasehodepine er faktisk ikke en hodepine, men en svært alvorlig nevrologisk smertelidelse.

Når ordet "hodepine" er bakt inn i Klasehodepinens diagnosenavn gir dette negative konsekvenser på utallige plan. Navnet KlaseHODEPINE gjør at alvoret undervurderes og lidelsen bagateliseres. Dette er dagens tema.

Meld meg gjerne på instagram: @klasepodden.123 eller @christinefinngaard om du har tanker, ideer eller meninger.

A trigger warning is given for this episode:

In this episode I talk about a very difficult topic:

Cluster headache and suicide.

September is suicide awareness month.

10th of september is world wide suicide prevention day.

I send here a clear message for more research, better pain managment, better medications and much more care for cluster headache patiens around the globe.

We have no one to lose!

If you have suicidal thoughts, please call emergency numbers in your country/region.

Here are some helpline numbers:

USA/Canada: 988, Great Britain/Ireland: 116 123, Australia: 131114/000, Netherlands: 113/0800-0113/112, Norway:113

You can contact me on @klasepodden.123 and @christinefinngaard on instagram

Take good care, and please reach out for help when needed.

Et forvarsel gis i forkant av denne episoden:

I denne episoden snakker jeg om et svært vanskelig men dessverre aktuelt tema: Klasehodepine og selvmord.

September er "suicide prevention month, og 10 September er verdensdagen for selvmordsforebygging.

I denne anledning ber jeg om mer forskning, flere forskningsmidler bevilget til klasehodepine, og behandlinger som blir godkjent for oss med klasehodepine. Vi lever nå. Vi trenger nye tilbud nå, slik at flere liv ikke vil gå tapt.

Om du har selvmordstanker, RING: 113

Kontakt meg gjerne på @klasepodden.123 og @christinefinngaard på instagram.

Ta godt vare, VI HAR INGEN LIV Å MISTE.

In this episode of Klasepodden I will describe how it feels to live trough nights and mornings with cluster headache, the burden of living with an invisible illness, and how to relate to society.

Please feel free to contact me on Instagram: @klasepodden.123 or @christinefinngaard

I will also recomend the fantastic group (or "club") Clusterbuds on Discord for all who suffers from cluster headache (and their loved ones) : https://discord.gg/clusterbuds

(transcript errors will be fixed for the net episode)

I denne episoden snakker vi om reising med klasehodepine: alt fra frykten for anfall på fly og offentlige plasser, til medisiner og oksygen, og hva som er lurt å planlegge før en ferie som innebærer reising for oss med klasehoidepine. Jeg håper mine tips og tanker vil være til nytte :) Ønsker dere med dette en nydelig sommer:)

Kontakt meg gjerne på instagram: @klasepoddden.123, eller @christinefinngaard :)

In this episode we will talk about traveling and cluster headache: everything from the fear of getting attacks on an airplane or in public places, medications and oxygen, and what to consider planning ahead of a holiday consisting traveling when you suffer from cluster headache. With this i wish you a really nice summer:)

This episode is in two parts, the first in Norwegian, and the last part in English (about the last 18 minutes)

I hope this episode will be helpful:)

Please feel free to contact me on instagram: @klasepodden.123 or @christinefinngaard :)

Klasepodden tar seg littt ferie, og er takknemmelig for deres engasjement, og lytt gjerne til episodene i mellomtiden:) I ferien kan dere finne oss på instagram: @klasepodden.123 og @christinefinngaard . Følg med, for vi har mye spennende som kommer:)

Klasepodden vil take a small holiday-break, an we appreciate you listening to the epoisodes in the meantime.:) During the summer you can also find us on instagram: @klasepodden.123 or @christinefinngaard. Follow us for more exiting topics and subjects coming:)

Today, my son, William Finngaard, is a guest on Klasepodden. He talks about growing up in a home affected by serious illness from the age of 7 until to today, now as a 23-year-old design student living in Oslo.

In this episode, we hear his perspectives and experiences of living closely with a single mother who has both chronic cluster headaches and bipolar disorder.