In this episode of the VisibilOT Podcast, we’re kicking off both National Occupational Therapy Month and FND Awareness Month with a very special guest: Jason Kreuzman, MOT, OTR/L. Jason is an occupational therapist at St. Louis Children’s Hospital, where he treats a wide range of pediatric patients with a focus on Functional Neurological Disorder (FND), chronic pain, and mental health conditions. As the lead rehabilitative expert for FND and a member of the hospital’s multidisciplinary pain team, he brings a nuanced and compassionate approach to care.

Jason is a founding member of the FND Society and currently serves as co-chair of its pediatric sub-committee, working to advance community awareness and professional understanding of FND. He recently presented on the role of occupational therapy in pediatric FND at the 2024 FND Society International Conference and is conducting ongoing research through the organization, exploring how rehab professionals understand and treat pediatric FND.

Join us as we dive into Jason’s clinical insights, research, and advocacy work—shining a light on the critical role of OT in treating invisible and complex conditions.

Medical Advice Disclaimer

The content of this podcast is for educational purposes only and does not constitute medical or therapeutic advice. Always consult a qualified healthcare provider for personalized medical concerns. Listening to this podcast does not establish a professional relationship with VisibilOT, its hosts, or guests. VisibilOT will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Resources Mentioned in this Episode:

• FND Hope
• NeuroSymptoms.org
• Join the FND Society
• Connect with Jason on Instagram
• Re+Active PT
• Teen FND Academy
• FND Courage
• FND Hope Feedback Survey

More Helpful Resources

While we are not affiliated with these organizations, they offer valuable information and support for those with invisible disabilities and chronic conditions:

• Bateman Horne Center – Resources and support for ME/CFS, fibromyalgia, and other complex chronic illnesses.
• Solve M.E.- Solve M.E. takes a holistic approach to research and advocacy, catalyzing efforts through various programs to make ME/CFS, Long Covid, and other “long haul” diseases better understood, diagnosable, and treatable.
• Long Covid Alliance- a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform understanding of post-viral illness.

Connect with Us!

Do you have questions, comments, or ideas for future episodes? Are you interested in being a guest on VisibilOT to share your story or expertise? Contact us at podcast@visibilot.com.

Thank you for tuning in to VisibilOT! Be sure to subscribe, share, and leave a review to help us bring visibility to invisible challenges. Together, we can make a difference.

In this episode of The VisibilOT Podcast, we’re diving into the mission and impact of The Dysautonomia Project (TDP), a nonprofit dedicated to bridging the gap between what autonomic specialists know and what patients and community-based providers need to know. Since its grassroots beginnings in 2014, TDP has become the global leader in dysautonomia education, believing that education is the number one treatment.

Joining me are two incredible guests: Cheryl Faber, Director of Education for TDP, and Dr. June Bryant, a doctoral-prepared nurse practitioner and Medical Ambassador for TDP. Cheryl shares her journey in advancing provider education and patient awareness, while June offers insights into the clinical side of dysautonomia care, including her research and work in primary care.

We’ll explore TDP’s groundbreaking initiatives, including their award-winning book The Dysautonomia Project, their free online Autonomic Education library, and The Residents Course, which is revolutionizing medical training in autonomic disorders. Cheryl and June also discuss the importance of collaboration between healthcare professionals, patients, and advocacy groups to improve access to knowledgeable care.

Whether you're a patient, provider, or advocate, this episode will leave you inspired by the work being done to increase awareness and access to dysautonomia education. Tune in to learn how we can all contribute to bridging the gap in care!

Medical Advice Disclaimer

The content of this podcast is for educational purposes only and does not constitute medical or therapeutic advice. Always consult a qualified healthcare provider for personalized medical concerns. Listening to this podcast does not establish a professional relationship with VisibilOT, its hosts, or guests. VisibilOT will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Resources Mentioned in this Episode:

• The Dysautonomia Project
• TDP Provider Finder Tool
• The Residents Course
• The Dysautonomia Project Book

More Helpful Resources

While we are not affiliated with these organizations, they offer valuable information and support for those with invisible disabilities and chronic conditions:

• Bateman Horne Center – Resources and support for ME/CFS, fibromyalgia, and other complex chronic illnesses.
• Solve M.E.- Solve M.E. takes a holistic approach to research and advocacy, catalyzing efforts through various programs to make ME/CFS, Long Covid, and other “long haul” diseases better understood, diagnosable, and treatable.
• Long Covid Alliance- a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform understanding of post-viral illness.

Connect with Us!

Do you have questions, comments, or ideas for future episodes? Are you interested in being a guest on VisibilOT to share your story or expertise? Contact us at podcast@visibilot.com.

Thank you for tuning in to VisibilOT! Be sure to subscribe, share, and leave a review to help us bring visibility to invisible challenges. Together, we can make a difference.

In this episode of VisibilOT, Lisa sits down with Chris Werge, who shares his personal journey living with long COVID. Chris opens up about the challenges he has faced, from navigating various treatments and their uncertainties to managing the profound impact of the condition on his daily life. Through his story, he highlights the emotional and physical toll of chronic illness, shedding light on the importance of understanding and supporting those with invisible disabilities.

The conversation explores how long COVID has shaped Chris’s sense of identity, his experiences with empathy and communication, and his search for purpose in the face of adversity. Chris shares how creative outlets have become a meaningful way to cope and find fulfillment, even amid the challenges of chronic illness. He also reflects on the role of grief in adjusting to a new reality and provides thoughtful advice for those newly diagnosed, emphasizing the importance of pacing, rest, and leaning on community support.

Chris and Lisa also engage in a candid discussion about vaccine mandates, side effects, and the complexities of healthcare and rehabilitation for long COVID patients. They delve into the critical need for better awareness and understanding of long COVID symptoms and the broader impacts on daily life.

This heartfelt and thought-provoking episode offers valuable insights into the long COVID experience while emphasizing the need for greater compassion, support, and advocacy for those living with chronic conditions. Tune in to hear Chris’s inspiring story and his message of resilience and hope.

Medical Advice Disclaimer

The content of this podcast is for educational purposes only and does not constitute medical or therapeutic advice. Always consult a qualified healthcare provider for personalized medical concerns. Listening to this podcast does not establish a professional relationship with VisibilOT, its hosts, or guests. VisibilOT will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Resources Mentioned in this Episode:

• McCullough Protocol
• Subscribe to Chris on YouTube
• Follow Chris on Instagram
• The Long Covid Handbook- Gez Medinger

More Helpful Resources

While we are not affiliated with these organizations, they offer valuable information and support for those with invisible disabilities and chronic conditions:

• Bateman Horne Center – Resources and support for ME/CFS, fibromyalgia, and other complex chronic illnesses.
• Solve M.E.- Solve M.E. takes a holistic approach to research and advocacy, catalyzing efforts through various programs to make ME/CFS, Long Covid, and other “long haul” diseases better understood, diagnosable, and treatable.
• Long Covid Alliance- a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform understanding of post-viral illness.

Connect with Us!

Do you have questions, comments, or ideas for future episodes? Are you interested in being a guest on VisibilOT to share your story or expertise? Contact us at podcast@visibilot.com.

Thank you for tuning in to VisibilOT! Be sure to subscribe, share, and leave a review !