Untold Stories: Life with a Severe Autoimmune Condition copertina

Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

Di: iHeartPodcasts
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A proposito di questo titolo

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

2026 iHeartMedia, Inc. © Any use of this intellectual property for text and data mining or computational analysis including as training material for artificial intelligence systems is strictly prohibited without express written consent from iHeartMedia Disturbo fisico e malattia Igiene e vita sana Scienza Scienze biologiche
Episodi
  • Dave: Then and Now with CIDP

    Dave: Then and Now with CIDP
    Nov 4 2026

    When Dave was diagnosed with CIDP at 24, there was no roadmap for what came next. Nearly 25 years later, he found his own ways to adapt, advocate for himself, and keep moving forward. Now, he’s sharing what he learned with people just beginning that journey, in a world where living with CIDP looks very different than it did when his began.

    See omnystudio.com/listener for privacy information.
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    22 min
  • Waiyee: The Power of Connecting Your Myositis Care Team

    Waiyee: The Power of Connecting Your Myositis Care Team
    Oct 22 2026

    Living with antisynthetase syndrome, a subtype of myositis, means Waiyee’s care doesn’t fit neatly into one doctor’s office. She’s learned how to ask questions, keep multiple specialists connected, and advocate for what she needs. Along the way, she found an unexpected outlet in art and an online community that transformed her own search for support into a way to help others feel seen.

    See omnystudio.com/listener for privacy information.
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    24 min
  • Allison: A Lifetime of Progress with MG

    Allison: A Lifetime of Progress with MG
    Oct 7 2026

    Allison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she’s witnessed along the way, from a growing understanding of MuSK-positive MG to advances in treatment and care that continue to shape the road forward for people living with MG today.

    See omnystudio.com/listener for privacy information.
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    26 min
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