Traveling With Chronic Illness: The Hidden Costs
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Travelling with disabilities thanks to invisible and chronic illness is not for the faint of heart!
Today the ladies discuss the hidden costs (financial and emotional) of travel.
We talk about the judgement that is either real or perceived as we move through airports and planes with our mobility aids and our physical challenges. And speaking of mobility aids, the real threat of our aids (wheelchairs, etc.) being tossed around and broken, or lost altogether during the travel process adds massive stress to our travels. Not only does it take an emotional toll, but what is one to do with a broken (or lost) aid once their destination is reached? The physical challenges and cost to our health that arise from that are huge.
Susie shares another poop story. (Of course she does.) The need for pre-loaded enemas make packing a nightmare, never mind using them!
But it’s not all about us.
When it comes to chronic illness and disability, your story matters.
When people with lived experience are invited to the table, they improve society standards and symptoms, and can make the process of change so easy.
For those who have the capacity to advocate for safer, more accessible journeys for Canadians, head to these two places:
CNIB: https://www.cnib.ca/en/support-us/advocate/advocacy-campaigns/advocating-safer-more-accessible-journeys
Canada’s Minister of Transportation: Steven MacKinnon
https://www.ourcommons.ca/members/en/steven-mackinnon(88468)#contact
And to read Erica’s article that was mentioned, head over here:
https://www.theartoftakingupspace.com/post/reflections
CONTACT INFORMATION:
Email: iseeyouthepodcast@gmail.com
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ERICA:
Website: www.theartoftakingupspace.com
IG: @ericazacharias
SUSIE:
Website: www.susieschwartz.com
IG: @authorsusieschwartz
Substack: The Quest for Less Health Stress, Secrets of a Thriller Writer
Book: Help the Doctor Help You: 41 secrets and tips for self-advocacy to get the BEST from your appointments. (Available on Amazon, Waterstones.com, Ingram Spark)