The LCC Circle copertina

The LCC Circle

The LCC Circle

Di: Ashley
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A proposito di questo titolo

We share stories, successes, and scientific insights from the world of ultra-rare diseases. Through heartfelt conversations and expert insights, we bring together families, researchers, and advocates to illuminate the path toward understanding and treating LCC/Labrune Syndrome.


© 2025 The LCC Circle
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  • What is LCC?
    Oct 9 2025
    In Episode 1, host Holly Tinker is joined by Dr. Jamie Fraser and Ashley Dike to explore the basics of Leukoencephalopathy with Brain Calcifications and Cysts (LCC), also known as Labrune Syndrome. Together, they share what this ultra-rare disease is, how it impacts families, and why the connection between patients, caregivers, and researchers is vital to finding answers.


    Support the show

    🩵 Thank you for listening to The LCC Circle Podcast!
    Your support helps us continue sharing the stories, science, and strength of our global LCC community.

    🎧 If you found this episode meaningful, please consider becoming a monthly supporter:
    👉 https://www.buzzsprout.com/2545566/support

    📲 Don’t forget to follow, rate, and share the podcast — it helps others discover our community and learn about LCC/Labrune Syndrome.

    Thank you for being part of The LCC Circle. Together, we are raising awareness, building connection, and fueling hope. 💙💗💜

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    33 min
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