Rare Disabilities, Advocacy, Resilience & Team Matthew Luis | Josephine Novo x Martha Castillo- Making Miami Podcast
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Rare Disabilities, Advocacy, Resilience & Team Matthew Luis | Josephine Novo x Martha Castillo- Making Miami Podcast
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In this inspiring episode, Josephine Novo sits down with Martha Castillo, a devoted mother and the founder of Team Matthew Luis, a nonprofit created in honor of her son, Matthew Luis, who is diagnosed with Phelan-McDermid Syndrome (PMS).Martha shares her emotional and powerful journey — from navigating Matthew’s diagnosis to becoming an advocate, educator, and community-builder for families facing rare genetic disorders. Her story is one of resilience, love, and unwavering determination to bring resources, awareness, and hope to others.Plus:💙 A look into the mission and impact of Team Matthew Luis🧠 Insight into life with Phelan-McDermid Syndrome and how the syndrome affects families🤝 How Martha is building community support, resources, and awareness for rare diseases