Ramblin' Rare by ACD copertina

Ramblin' Rare by ACD

Ramblin' Rare by ACD

Di: Randy Allen
Ascolta gratuitamente

3 mesi a soli 0,99 €/mese

Dopo 3 mesi, 9,99 €/mese. Si applicano termini e condizioni.

A proposito di questo titolo

A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.orgACD 2022 Disturbo fisico e malattia Igiene e vita sana Medicina alternativa e complementare
  • Siblings!
    Sep 2 2022

    Opportunities, Challenges and Strategies for Siblings of Rare Disease Children

    On this episode, Randy and Nathan will discuss siblings of our rare disease kiddos.

    Three main takeaways..

    1. Siblings will naturally grow into their roles as an exceptional needs brothers or sisters, however that does not remove our responsibility as parents to help equip them for the task.

    2. Rare disease siblings seem to mature quicker, gain more perspective earlier in life but we as parents need to go out of our way to ensure that they can still be kids and have typical childhood experiences.

    3. Siblings will be siblings - they will bother one another regardless of rare disorder or not! Allow our neuro-typical siblings to be real, get annoyed, upset, etc.

    www.creatineinfo.org

    Mostra di più Mostra meno
    35 min
  • Travel Tips & Making Memories
    Jun 14 2022

    Traveling this summer?

    Tune in for some tips & strategies to help create some memories with your family!

    Mostra di più Mostra meno
    22 min
Ancora nessuna recensione