Finding a cure for a rare disease requires unmatched dedication. See how parental advocacy is driving urgent medical research.

This video documents the personal journey of a mother fighting for her child, Erik, and the critical search for a treatment. We take you inside the laboratory to see current research efforts firsthand and highlight the community support shown at various fundraising events. This story is for anyone seeking to understand the reality of rare disease advocacy in Switzerland and the relentless pursuit of medical breakthroughs.

Learn how families are taking action when standard options are not enough. By focusing on scientific progress and parental motivation, we shed light on what it truly takes to push rare disease research forward.

Visit the website of the ASNSD Research Association to see who is working on the different projects and what their goal is: https://www.asnsdresearch.org/about-us

This video has been recorded on January 21 and February 27, 2026.
Directed, filmed and edited by: Céline Stegmüller
Additional filming and editing: Carlo Pisani
Research and interview: Jessica Davis Plüss
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swissinfo.ch is the international branch of the Swiss Broadcasting Corporation (SBC). Its role is to report on Switzerland and to provide a Swiss perspective on international events.

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“I’m not the story of persecution. The story is the Russian people.” A new episode of Swissinfo’s mini-documentary series follows Mariana Katzarova, the first United Nations Special Rapporteur on Human Rights in Russia, as she exposes the reality of torture, political repression and arbitrary detention in today’s Russia.

The film follows Katzarova from UN Human Rights Council sessions, meetings at the European parliament in Brussels where she gathers testimonies from Ukrainian and Russian survivors of torture. It offers a rare insight into how international accountability mechanisms work.

#MarianaKatzarova #Russia #HumanRights #UN #Ukraine #Torture #PoliticalPrisoners #SWIswissinfo #closeUp #Chechnya #WarCrimes #UkrainianPOWs #SpecialRapporteur #HumanRightsDocumentary

Directed by Elena Servettaz
Filmed and edited by Carlo Pisani
Additional filming and editing: Céline Stegmüller and Michele Andina

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swissinfo.ch is the international branch of the Swiss Broadcasting Corporation (SBC). Its role is to report on Switzerland and to provide a Swiss perspective on international events.

For more articles, interviews and videos visit swissinfo.ch or subscribe to our YouTube channel:

Website: http://www.swissinfo.ch
Channel: / swissinfovideos
Subscribe: http://www.youtube.com/subscription_c...

Swiss-Brazilian artist Guerreiro do Divino Amor will represent Switzerland at the 60th Venice Art Biennale, opening Saturday. He gave SWI swissinfo.ch a preview of his work.
The Biennale, reminiscent of 19th-century world exhibitions, features 30 national pavilions in the Giardini and a major exhibition in the Arsenale. This is the second consecutive time Switzerland has chosen an artist with a migration background, following Latifa Echakhch in 2022.
Guerreiro, born in Geneva and living in Rio de Janeiro for over ten years, feels more accepted and creative there. The Biennale, curated by Brazilian Adriano Pedrosa under the theme “Foreigners Everywhere,” highlights decolonisation, migration, and war.
Guerreiro’s work, “The Superfictional Atlas of the World,” includes “The Miracle of Helvetia” and “Rome Talisman,” transmedia installations blending fantasy and hyper-realism. He appropriates and transforms images from various institutions into allegorical narratives.
Andrea Bellini, curator of the Swiss exhibition, invites visitors to feel foreign within their own truths. Guerreiro is featured in the fourth episode of “On the Record.”

The consequences of the suffering experienced by children during the war in Ukraine and the challenges faced by children in Switzerland are examined by Philip Jaffé, a Swiss professor of psychology and vice president of the United Nations Committee on the Rights of the Child. more on this story and other related reports on SWI swissinfo.ch

Full version of the video and more on this interview please click: SWI swissinfo.ch

Russian writer Mikhail Shishkin, who lives and works in Switzerland, is our guest in On the Record. He talks about how to defend Russian culture, how he witnessed Switzerland welcome dirty money with open arms and whether Russia and Ukraine will ever be able to reconcile. More on this story SWI swissinfo.ch

Journalist: ⁠Elena Servettaz Video journalist & editor: ⁠Carlo Pisani

He is one of the most influential drummers of recent decades, known both as a skilled technician and a visionary. Jojo Mayer talks to SWI swissinfo.ch about technology, tradition – and the future of music. More from SWI swissinfo.ch

Journalist: Giannis Mavris Video journalist & editor: Carlo Pisani