No Decisions for Us Without Us: Giving Patient Innovators a Seat at the Table
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Is this episode we chat with Carlota Santos and Gemma Tria from Patient Innovation. In this chat we discuss a powerful shift in healthcare: seeing patients and care partners not just as recipients of care, but as innovators, problem solvers, and drivers of change.
Carlota and Gemma share how Patient Innovation recognizes the unique expertise that comes from lived experience, and how patients around the world are creating solutions to improve quality of life, from practical tools to groundbreaking technologies.
The conversation explores why healthcare systems must move beyond simply “including” patients and instead partner with them from the very beginning of the innovation process. From rare disease communities to digital health solutions like Be My Eyes, this episode highlights how patient-led ideas can reshape healthcare when the right support, collaboration, and opportunities exist.
And if you haven’t already listened to episode 12 with Gal Hostnik, please do. Gal is a patient innovator who has participated in the Patient Innovation boot camp and he’s doing amazing things for people on dialysis.
Resources:
Patient Innovation platform
Unlocking Innovation in Healthcare: The Case of the Patient Innovation Platform
Patient innovation under rare diseases and chronic needs
Learn more about our show and submit ideas
#PatientInnovation #PatientsAsPartners #LivedExperienceMatters #HealthcareInnovation #NothingAboutUsWithoutUs