In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation. From regional theater to healthcare, to programs offering chess to low-income students, he has helped organizers raise millions of dollars to fulfill their missions. For Paul, fundraising isn’t just about the money, it’s about the people, relationships and the shared mission that binds communities together.

In this conversation, we discuss:

~ Why fundraising is really about connection, not just donations

~ How you can support in ways that feel authentic, through words, art, social media or simply starting conversations

~ Why balance is a right, not a luxury

~ How to invite your friends and family into supporting the vestibular community

This episode is an invitation to participate. Whether through a post, poem, donation or a partnership, there’s a way for YOU to join in!

More on vestibular disorders www.vestibular.org

Are you a vestibular patient- PLEASE take a few moments and sign this registry The Dizziness, Vertigo and Imbalance Patient Registry - Vestibular Disorders Association

Connect with Heather: www.instagram.com/menieresmuse

Or email her at menieresmuse@gmail.com

Thank you for being here!

Be sure to use the hashtags #balanceawarenessweek #vestibulardisordersassociation #menieresmuse #makevestibularvisible

What does support really look like when you have a chronic illness? In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change.

This episode is more than a reflection. It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect. In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily.

Whether you have a strong support system or you’re still searching for one, this episode is for you. You are seen, you are believed, and you are not alone.

VeDA Support Groups Online Support Groups - Vestibular Disorders Association

Lara’s private FB Support Group (2) Mummy Seeing Double Support Group | Facebook

“8 Minute, One Connection” S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuA

If you would like more information on vestibular disorders www.vestibular.org

If you would like to reach out to me, Heather, please email me at Menieresmuse@gmail.com or find me on Instagram

Thank you for being here! Don't forget to link, share and subscribe!

#support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups

In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease.

While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments.

Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn’t come from false promises, it comes from community and clarity.

Find me on Instagram

Email me at menieresmuse@gmail.com

For more information on vestibular disorders www.vestibular.org

VeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428