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Let's Talk More About Sarcoma

Let's Talk More About Sarcoma

Di: CRBF
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This is a place where patients, families, clinicians, and researchers come together to speak openly, honestly, and with so much heart about every aspect of the sarcoma experience. The moments that take your breath away. The people who carry you through. The small wins that mean everything. The hard days that are allowed to be hard.

Whether you have just received a diagnosis, are somewhere in the middle of your journey, are supporting a person you love more than anything, or are simply looking for a community that understands, you are so welcome here.

You do not have to have all the answers. You do not have to be brave every single day. You just have to know that you are not alone. And you are not.

Brought to you by Sock it to Sarcoma! and the Cooper Rice-Brading Foundation, two organisations who believe with everything they have that no one should ever face sarcoma without the right people by their side.

If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au

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  • Advocating for Yourself: Pregnancy, Sarcoma, and Life as an Amputee with Jessica Cook
    Jul 22 2026

    In this moving episode of Let's Talk More About Sarcoma, guest Jessica Cook shares her extraordinary story of resilience, motherhood, and self-advocacy. After an 18-month struggle with what doctors repeatedly misdiagnosed as a routine muscle tear and haematoma, Jess was finally given a terrifying diagnosis: an aggressive 27-centimetre sarcoma.

    To make matters even more intense, she received this news while 23 weeks pregnant with her second child. Jess opens up about navigating the harrowing choice of undergoing an above-knee leg amputation while carrying her baby, delivering a healthy daughter at 32 weeks, and stepping straight into rounds of chemotherapy and radiation.

    Jess speaks about adjusting to a robotic prosthetic leg and managing energy levels as a young mother of two. She reflects on the vital importance of speaking up for your health, finding silver linings, and connecting with the supportive sarcoma community.

    If you would like more information please visit www.crbf.org.au

    See omnystudio.com/listener for privacy information.

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    37 min
  • Redefining the Runway: James Parr on Cancer, Representation, and Living in the Present
    Jul 15 2026

    In this moving episode, award-winning model James Parr shares his remarkable journey of resilience and self-advocacy. From losing his mother to cancer as a child to facing a difficult 10-month misdiagnosis that ultimately revealed osteosarcoma, a rare bone cancer in his ankle, James reflects openly on the shock of his diagnosis and the subsequent amputation of his right leg.

    Now a prominent figure on global runways for major brands like Calvin Klein and Ralph Lauren, James discusses how he uses his high-profile modeling career as a powerful catalyst to challenge traditional standards of beauty and normalise disability representation in the media.

    Stripping away the glamorous expectations, James discusses the realities of post-cancer health anxiety, navigating complex family dynamics, and the importance of unplugging from social media to truly live in the present moment.

    If you would like more information please visit www.crbf.org.au

    See omnystudio.com/listener for privacy information.

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    26 min
  • The Long Road to Diagnosis: Anne Pantazis on Life, Loss, and Survival
    Jul 8 2026

    In this episode, Anne Pantazis shares her harrowing 18-month medical journey, which began with minor leg numbness during an overseas trip in late 2018 and culminated in a life-altering diagnosis of myxofibrosarcoma. Facing continuous misdiagnoses and a critical lack of medical answers, Anne discusses the physical toll of her tumour, the realities of her hip disarticulation amputation, and the secondary complications, including a severe post-radiation wound infection, that delayed her rehabilitation. Balancing candor with resilience, Anne shares how she navigated massive life changes, coped with persistent phantom pain, and ultimately chose to rewrite her path through intense physical fitness, family support, and new perspectives on disability advocacy.

    If you would like more information please visit www.crbf.org.au

    See omnystudio.com/listener for privacy information.

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    33 min
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