He Renamed His Disease "Constant State of Adaptation." Then He Got Back to Work. copertina

He Renamed His Disease "Constant State of Adaptation." Then He Got Back to Work.

He Renamed His Disease "Constant State of Adaptation." Then He Got Back to Work.

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 Mark Wallach was diagnosed with ALS in April 2021. By then, he'd already been losing function in his right arm for years — adapting each time, finding workarounds. He's now a quadriplegic and also a working entrepreneur who recently posted about learning to drive his wheelchair with his eyes. That post reached more than 300 people outside his network. An assistive technology company in Germany reached out to send him equipment. (Could this be what happens when someone stops protecting the image and starts telling the truth about their sideways moment?) In this conversation, host of Things Go Sideways podcast, KiKi L'Italien, and Mark cover what it means to keep building when the losses keep coming — and they don't stop. They talk through the grief that doesn't end (he lost use of his right arm, then his left, then both legs), how ALS clarified rather than collapsed his sense of what matters, and what legacy actually looks like when you have a real timeline. They also get into bandwidth, delegation, AI as a genuine equalizer, and why Mark believes vulnerability isn't a soft concept — it's an access point. Mark has a name for his disease that isn't ALS. He calls it "CSA: Constant State of Adaptation." If you were hoping for tidy resolutions, you won't find them here. This episode doesn't end cleanly. It ends with a man still in the thick of it, still building, still figuring out how to receive what other people offer him. And that's where things get interesting! Timestamps 00:04 — KiKi names the premise: stories about reckoning, not highlight reels 01:45 — Mark shares his mission: earn the right to be the first call 04:01 — Mark renames ALS to CSA: constant state of adaptation 06:07 — Going public with vulnerability: unexpected reach and a $8K technology offer 09:49 — What the disease taught him that anyone could use 14:47 — Outsourcing admin, leaning on AI, and working as a quadriplegic 18:21 — Mind shift: from salesperson stigma to connector with purpose 22:34 — Why building for legacy means learning to replace yourself 26:29 — What legacy actually looks like: his wife, his reputation, pizza nights 29:54 — The first sideways moment: August 2018, a weak right arm at Whole Foods 33:28 — The diagnosis, stopping driving, and doing what he'd been putting off 38:51 — Getting out of a funk: goals matter more than self-pity — with permission for rest 40:45 — The hardest thing he's learned: accepting help and letting go of the how 44:33 — The cave question: learning to receive what others offer Resources 🔗 Mark Wallach on LinkedIn: https://www.linkedin.com/in/markwallach/ 🌐 Engagement Mobile Strategies: https://www.engagementmobile.com/ 💙 I Am ALS (advocacy organization): https://www.iamals.org/ 💙 The ALS Association: https://www.als.org/ About the Things Go Sideways Podcast When life or leadership goes sideways, the story's just getting interesting. Things Go Sideways with KiKi L'Italien features honest conversations with leaders, creators, and changemakers navigating disruption, uncertainty, and identity shifts. Each episode explores trust, resilience, and what it means to stay human when certainty breaks down. New episodes share real stories about rebuilding agency and meaning without rushing to quick-fixes, spiritual bypassing, or pretending clarity comes easy.
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