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Hope in Focus Podcast

Hope in Focus Podcast

Di: Hope in Focus
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The Hope in Focus Podcast, hosted by Ben Shaberman, brings monthly stories and insights to the Leber congenital amaurosis (LCA) and inherited retinal disease (IRD) community. Together, we discuss personal stories, research and scientific updates—including gene therapy and drug development—tools and resources that support accessibility and independence, and insights to help families better understand early-onset vision loss. Hope in Focus is dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and IRDs.All rights reserved
Episodi
  • Hope in Focus Podcast | Episode 14 - The Latest in LCA1 and LCA4 Research with Dr. Paul Yang

    Hope in Focus Podcast | Episode 14 - The Latest in LCA1 and LCA4 Research with Dr. Paul Yang
    Oct 14 2026
    Hope in Focus Podcast | Episode 14 - The Latest in LCA1 and LCA4 Research with Dr. Paul Yang by Hope in Focus
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    26 min
  • Hope in Focus Podcast | Episode 13 - Inside the LCA10 Clinical Trial: A Conversation with Sepul Bio

    Hope in Focus Podcast | Episode 13 - Inside the LCA10 Clinical Trial: A Conversation with Sepul Bio
    Sep 2 2026
    In this episode, we speak with Mike, Chief Operating Officer at Sepul Bio, about the company’s promising RNA therapy for LCA10, currently being studied in a Phase 3 clinical trial. Mike shares how he became involved in the inherited retinal disease space and discusses his role at Sepul Bio. We also explore the clinical trial process, how sepofarsen works, the differences between RNA and DNA therapies, and what patients can expect during treatment. Throughout the conversation, Mike emphasizes the importance of patient voices and involvement in the development of new treatments. To learn more about the LCA10 clinical trial, contact Sepul Bio at contact@sepulbio.com or visit their website.
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    35 min
  • Hope in Focus Podcast | Episode 12: Understanding Clinical Trials with Dr. Jason Comander

    Hope in Focus Podcast | Episode 12: Understanding Clinical Trials with Dr. Jason Comander
    Jul 6 2026
    Dr. Jason Comander is the Ayub Family Chair in Ophthalmology and Director of the Inherited Retinal Disorder Service at Mass Eye and Ear. He has led several groundbreaking clinical trials, including delivering the first commercial dose of LUXTURNA® for LCA2 caused by RPE65 mutations and serving as the lead investigator and surgeon for the first CRISPR-Cas9 gene editing trial for LCA10 caused by CEP290 mutations. In this episode, Dr. Comander explains how gene therapies and gene editing approaches differ, shares insights from his experience leading clinical trials, and discusses what families should know when considering trial participation. He also explores emerging treatment approaches, including optogenetics and cell therapies, and offers an optimistic perspective on the future of inherited retinal disease research.
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    39 min
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