Holding On and Letting Go: Karen’s Care Partner Story
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Holding On and Letting Go: Karen’s Care Partner Story
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Karen McLean describes life after her husband Scott was diagnosed with early-onset Alzheimer’s at age 52. She recalls the first subtle changes, the rapid decline that followed and the decision to move Scott into full-time care. Karen speaks openly about exhaustion, care-partner burnout and the support she receives from the Alzheimer Society community.
Key Takeaways-
Early Signs and Diagnosis – Subtle mood and behaviour shifts pointed to something deeper.
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Care-Partner Strain – Physical fatigue and emotional stress build quickly; burnout is real.
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Community Response – Positive support from neighbours, professionals and friends matters.
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Family Impact – Loved ones grieve before a physical loss, and Karen’s daughter feels she “lost Dad twice.”
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Role of the Alzheimer Society – Education, counselling, and peer groups provide critical relief
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HelpForDementia.ca – Information, support, and programs for people living with dementia and their care partners
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Alzheimer.ab.ca – Free education and services for families and care partners
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AlzheimersFaceOff.ca – Edmonton-based hockey tournament that raises funds for free dementia education, support services and research