Ep 9: Hero Summit Pt. 2 - Barriers to Care
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Ep 9: Hero Summit Pt. 2 - Barriers to Care
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In this Hero Summit mini-sode, Candice and Rachael dig into the barriers that keep people with systemic mastocytosis from confidently living with their disease — from misinformation and confusing language to complicated healthcare systems and limited physician guidance. They also explore practical solutions, including better patient education, vetted resource hubs, peer support, and technology tools that could make diagnosis and long-term care easier. The conversation highlights how patient stories and community knowledge can create real empowerment, especially for people navigating rare disease.
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