Ep. 22: Ultra-Rare and Undiagnosed (with Christine McGarvey) copertina

Ep. 22: Ultra-Rare and Undiagnosed (with Christine McGarvey)

Ep. 22: Ultra-Rare and Undiagnosed (with Christine McGarvey)

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In this episode, we welcome Christine McGarvey, a podcast listener and rare disease advocate, who shares her inspiring journey of living well despite significant health challenges. Christine talks about her decade-long journey to get a diagnosis, how her advocacy work has brought meaning to her life, and the lessons she’s learned about resilience, compassion, and staying present.

What You'll Hear in This Episode:

  • How Christine has turned her pain into purpose through advocacy
  • The role of compassion in navigating chronic illness
  • How to find meaning and fulfillment in the face of uncertainty
  • Insights on parenting children who have similar health challenges
  • The power of community and connection for those with rare or undiagnosed conditions

Episode Links:

  • National Organization of Rare Disorders (NORD)
  • Undiagnosed Disease Network Foundation

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You can now join us on Patreon! It’s a space where you’ll find bonus content, live coaching calls, and a private Facebook group for support and inspiration to help you live well, no matter what health challenges you’re facing. Your membership also helps support the podcast. Learn more: Patreon.com/LivingWellPod

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