Ep. 10: Living with Advanced SM w/guest Rachell Largent-Phillips
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Ep. 10: Living with Advanced SM w/guest Rachell Largent-Phillips
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In this episode, patient and advocate Rachell Largent-Phillips shares her journey with systemic mastocytosis, from diagnosis to advanced disease, and how advocacy has transformed her life. We explore the challenges of living with a rare disease, navigating the healthcare system, and the power of patient voices in driving change. We also get into some of the finer points of dating and intimacy while living with a complex disease. Our guests share personal stories, insights on resilience, and practical tips for managing health and fostering connection.They discuss the impact of environmental factors, medication, and emotional health on chronic conditions, offering valuable tips for those navigating similar challenges.
Follow Rachell Largent-Phillips on her socials
https://www.facebook.com/nikkinew
https://www.instagram.com/tammie_rachell/
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