Caregivers SHARE, a St. Jude Podcast copertina

Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

Di: St. Jude (SJCRH)
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A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 Disturbo fisico e malattia Igiene e vita sana
Episodi
  • From Overwhelmed to Informed: Helping Caregivers Navigate Health Information

    From Overwhelmed to Informed: Helping Caregivers Navigate Health Information
    Oct 22 2026
    Medical terms, treatment plans, and new information can feel overwhelming when your child has a serious illness. In this episode of Caregivers SHARE, Mark Brown, MDiv, talks with Samantha Ransone, PhD, and caregiver Harry Walker (“Big Harry”) about health literacy, or understanding and using health information.

    Harry’s son, “Little Harry,” was diagnosed with acute myeloid leukemia (AML) in 2023 at age 2. Big Harry learned how to communicate with the care team as his son went through treatment.

    Throughout this episode, the group talks about steps caregivers can take to get the medical information they need in a way that makes sense to them. Caregivers will learn practical ways to ask questions, talk with their child’s care team, find online health information that they can trust, and use AI as a starting point but not a final answer.

    Caregivers are reminded that no question is too simple. Speaking up and sharing how they learn best can help families take part in their child’s care.

    A special thank you our host, Mark Brown, director of Spiritual Care at St. Jude; our expert, Samantha Ransone, director of Medical Content and Patient Outreach at St. Jude; and parent Harry Walker.

    Learn more about Harry’s diagnosis of acute myeloid leukemia (AML) on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about Harry’s treatment and his story.

    This episode was recorded on October 7, 2026.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    27 min
  • Encore: Understanding Sickle Cell Disease

    Encore: Understanding Sickle Cell Disease
    Sep 17 2026
    Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the body and daily life.

    In this re-release of a 2025 episode honoring Sickle Cell Awareness Month, parents Audrey Davis and Quenton Mullins share their experiences supporting their daughters, Courtney and Nia, through sickle cell disease. Together with host Tekeima Townsend-Billups and expert Jerlym Porter, they explore the invisible and unpredictable nature of the disease, dealing with pain crises, the importance of therapy, and advocating for their children.

    A special thank you our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Jerlym Porter, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and parents Audrey Davis and Quenton Mullins. Learn more about Courtney and Nia’s diagnosis of sickle cell disease and the transition to adult health care on Together by St. Jude™.

    The statistics that Quenton mentions on sickle cell disease in the U.S. can be found on the CDC’s website.

    Discover more insights into Nia’s journey on the Together Blog.

    Learn about the history of sickle cell disease treatment and how St. Jude has helped transform care for people living with the disease.

    This episode was recorded on May 15, 2025.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    46 min
  • Finding Your Voice: A Teen’s Perspective on Serious Illness

    Finding Your Voice: A Teen’s Perspective on Serious Illness
    Aug 20 2026
    When a teen has a serious illness, it can be hard to know how to help. Teens often want to do more on their own as they grow. Caregivers may wonder how to talk with their teen. They may also want to know how to include teens in care choices and help them handle hard feelings.

    In this episode, Erica Sirrine, PhD, LCSW, talks with St. Jude patient Michelle and Tori Hinton, PhD, CCLS, senior child life specialist at St. Jude Children’s Research Hospital. They share ways family caregivers can help teens during a serious illness.

    Michelle discusses what she learned during treatment for acute myeloid leukemia, or AML. She talks about how her family communicated, made care choices together, and handled difficult emotions. She also shares how art, journaling, calming exercises, and support from friends helped her manage stress and stay connected to who she is.

    Tori explains why giving teens a chance to take part in care decisions matters. She shares ways caregivers can support a teen’s independence while staying connected. The group also explores how to talk honestly, handle stress, and help teens feel heard.

    A special thank you to our host, Erica Sirrine, director of Social Work at St. Jude; our expert, Tori Hinton, senior child life specialist at St. Jude; and St. Jude patient Michelle.

    This episode was recorded on August 3, 2026.

    Learn more about Michelle’s AML diagnosis on St. Jude Care & Treatment and Together by St. Jude™.

    Read about Michelle’s art on the St. Jude website.

    Learn about navigating serious illness as a teen or young adult on Together Teens & 20s.

    St. Jude does not endorse any product or organization mentioned in this podcast.
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    41 min
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