Caregivers SHARE, a St. Jude Podcast copertina

Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

Di: St. Jude (SJCRH)
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A proposito di questo titolo

 A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 Disturbo fisico e malattia Igiene e vita sana
Episodi
  • Episode 11: What is a Clinical Trial

    Episode 11: What is a Clinical Trial
    May 7 2026
    Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will learn what clinical trials are, how they work, and how they differ from standard medical care.

    Host Clay Culp, LCSW, is joined by Seth Karol, MD, and caregiver Carina Richardson for a clear conversation about what families need to know when considering a clinical trial. Seth explains the different types and phases of clinical trials, what families can expect during the process, and the safety measures in place to protect children who participate. Clay addresses the emotional aspects of enrolling a child in a trial. Carina asks the questions many parents have as they work to make informed decisions about their child’s care.

    A special thank you to Clay Culp, social work manager at St. Jude; Seth Karol, a St. Jude doctor who specializes in leukemia and lymphoma; and parent Carina Richardson.

    This episode was recorded on March 5, 2026.

    Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on Together by St. Jude™ and St. Jude Care & Treatment.

    Find additional information about clinical trials on Together by St. Jude™ and St. Jude Care & Treatment.

    This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    32 min
  • Episode 10: Communicating with the Care Team During End-of-Life Care

    Episode 10: Communicating with the Care Team During End-of-Life Care
    Apr 16 2026
    When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child.

    In this episode, Tekeima Townsend‑Billups talks with parents Tasha and Dean Ives about caring for their daughter, Sydney, in her final months of life. They describe how their advocacy changed as Sydney’s health declined. They share what “quality of life” meant for their family, how they talked honestly with their children, and how they made day‑to‑day decisions based on Sydney’s well-being and wishes.

    Mike McNeil shares guidance on communicating with the care team during this time. He explains shared decision‑making and how trust supports better end‑of‑life care. He encourages caregivers to name their hopes and worries and to ask for the help they need.

    A special thank you to our host Tekeima Townsend‑Billups, senior staff chaplain at St. Jude; our expert Mike McNeil, pediatric oncologist and palliative care physician at St. Jude; and our guests Tasha and Dean Ives.

    This episode was recorded on December 5, 2025.

    Learn more about palliative care on St. Jude Care & Treatment and Together by St. Jude™.

    Listen to Tasha and Dean discuss communicating with the care team during treatment.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    47 min
  • Episode 9: Communicating with the Care Team During Treatment

    Episode 9: Communicating with the Care Team During Treatment
    Mar 19 2026
    Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as patient family-centered care expert Brittany Barnett, about how to ask questions and advocate for your child.

    Tekeima describes advocacy as a “sacred practice of love in action.” Advocacy moves caregivers to speak up during treatment. Tasha and Dean share how they learned how to advocate for their daughter, Sydney, during her treatment for astrocytoma.

    They explain what helped them find their voice, understand treatment options, and work with the medical team. They discuss balancing hope and reality, handling hard conversations, and trusting their instincts as parents. Brittany offers tips for joining in medical rounds, finding support, and making sure that your concerns are heard.

    A special thank you to our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Brittany Barnett, manager of the Patient Family-Centered Care Program at St. Jude; and to our guests, Tasha and Dean Ives.

    This episode was recorded on November 5, 2025.Learn more about Sydney’s diagnosis of astrocytoma on the Together by St. Jude™ online resource. Learn about brain and spine tumor treatment on St. Jude Care & Treatment.

    Learn more about patient family-centered care and shared decision-making on the Together Blog.
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    1 ora e 14 min
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