Episodi

  • The role of the nervous system in bladder conditions like interstitial cystitis and OAB.

    The role of the nervous system in bladder conditions like interstitial cystitis and OAB.
    May 29 2026
    In this episode of IC You, Dr. Sula Wingassen shares her personal journey with bladder conditions, explores the science behind bladder pain, and discusses holistic approaches including mindfulness and emotional processing to manage chronic symptoms.
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    1 ora e 2 min
  • Vulvodynia Expert Panel hosted by the Interstitial Cystitis Association

    Vulvodynia Expert Panel hosted by the Interstitial Cystitis Association
    May 15 2026
    This event was hosted by the Interstitial Cystitis Association On May 7, 2026.

    This expert panel followed a virtual screening of the film Lady Parts. Panelists include:
    👋🏻Dr. Jill Krapf: Board-certified OB/GYN specializing in sexual pain and vulvar health
    👋🏻Dr. Alicia Jeffrey-Thomas: Pelvic floor physical therapist and author focused on making pelvic health approachable
    👋🏻Sara Edwards: Sex therapist who helps people navigate intimacy, communication, and chronic pain
    👋🏻Bonnie Gross: Writer and producer using storytelling to bring awareness to women’s health
    Moderator: Callie Krajcir, The Bladder Dietitian® and Vice Chair of the ICA

    Stream Lady Parts: https://www.amazon.com/Lady-Parts-Nancy-Boyd/dp/B0GS7F2MZQ
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    57 min
  • Vulvodynia Expert Panel hosted by the Interstitial Cystitis Association

    Vulvodynia Expert Panel hosted by the Interstitial Cystitis Association
    May 9 2026
    This event was hosted by the Interstitial Cystitis Association. This expert panel followed a virtual screening of the film Lady Parts.
    Panelists include:
    👋🏻Dr. Jill Krapf: Board-certified OB/GYN specializing in sexual pain and vulvar health
    👋🏻Dr. Alicia Jeffrey-Thomas: Pelvic floor physical therapist and author focused on making pelvic health approachable
    👋🏻Sara Edwards: Sex therapist who helps people navigate intimacy, communication, and chronic pain
    👋🏻Bonnie Gross: Writer and producer using storytelling to bring awareness to women’s health
    Moderator: Callie Krajcir, The Bladder Dietitian® and Vice Chair of the ICA

    Stream Lady Parts: https://www.amazon.com/Lady-Parts-Nancy-Boyd/dp/B0GS7F2MZQ
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    49 min
  • From planning life around bathrooms to full freedom (Faith’s story)

    From planning life around bathrooms to full freedom (Faith’s story)
    May 5 2026
    Faith shares her journey with interstitial cystitis (IC), from constant burning, urgency, and anxiety to living a full life with lasting IC relief.

    After years of confusing symptoms, negative UTI tests, and an IC diagnosis, she felt stuck, overwhelmed, and unsure what to do next. Traditional treatments did not give her answers, and her world started to feel smaller.

    Inside Road to Remission, Faith began addressing the root cause of her IC symptoms through nervous system work. Within weeks, she noticed changes in urgency, sleep, and overall anxiety. Over time, her symptoms continued to decrease as she built tools, confidence, and a sense of safety in her body.

    Now, she travels, eats freely, and no longer plans her life around interstitial cystitis.

    In this episode, we cover:
    -How her interstitial cystitis symptoms started and progressed
    -Why traditional IC treatments did not lead to relief
    -The connection between the nervous system and IC symptoms
    -Early wins with urgency, frequency, and sleep
    -How she traveled while still healing from IC
    -The shift from fear and control to confidence and IC relief

    If you are struggling with interstitial cystitis or looking for a different path to IC relief, this episode will show you what is possible.
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    56 min
  • From vulvodynia to vestibulectomy to creating a movie (Bonnie's Story)

    From vulvodynia to vestibulectomy to creating a movie (Bonnie's Story)
    Mar 24 2026
    In this episode, I’m joined by Bonnie Gross, the writer and executive producer of Lady Parts, a comedy based on her real-life experience with vulvodynia, vestibulodynia, pelvic floor dysfunction, and vestibulectomy surgery.

    We talk about what it is actually like to live with vulvar pain, from pain with tampons, sex, sitting, tight clothes, and everyday life, to the years of medical gaslighting that so many women face before getting real answers. I also share parts of my own story with vulvodynia and surgery, which made this conversation feel especially personal.

    Bonnie opens up about finally getting diagnosed, undergoing a vestibulectomy, navigating recovery, and dealing with the emotional toll chronic pelvic pain can take on intimacy, relationships, mental health, and self-worth. We also talk about painful Pap smears, trauma in gynecology offices, why trauma-informed care matters, and how Lady Parts is helping more people feel seen through humor, honesty, and storytelling.

    This episode is for anyone dealing with vulvodynia, vestibulodynia, painful sex, chronic pelvic pain, bladder pain, pelvic floor dysfunction, or the feeling that your body is being dismissed.

    In this episode, we cover:
    -Vulvodynia and neuroproliferative vestibulodynia
    -Vestibulectomy surgery and recovery
    -Pelvic floor dysfunction and chronic pain
    -Medical gaslighting in women’s health
    -Painful sex, tampons, and Pap smears
    -Shame, intimacy, and relationships
    -Trauma-informed gynecologic care
    -Bonnie’s film Lady Parts and where to watch it
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    1 ora e 3 min
  • From debilitating period pain to symptom-free: Jill's endometriosis journey

    From debilitating period pain to symptom-free: Jill's endometriosis journey
    Mar 3 2026
    In this episode of IC You, we're talking about endometriosis, how it can show up, why it often takes way too long to get diagnosed, and what real relief can look like when you stop treating pain like it’s only a “tissue problem.” I’m joined by pelvic physiotherapist Jill Mueller, who shares her personal story, what finally helped her become symptom-free, and how she now helps others through pelvic PT, pain science, and nervous system work.

    We also dig into the overlap between endometriosis, interstitial cystitis (IC), and overactive bladder (OAB), including why so many people with endometriosis have bladder symptoms even when endometriosis isn’t actually on the bladder. If you’ve ever wondered “Is this endo, IC, OAB… or all of the above?”, this conversation will help you connect the dots without spiraling.
    Topics We Cover
    •Why debilitating period pain isn’t “normal,” even if you’ve been told it is
    •Fertility struggles as a common path to discovering endometriosis
    •The difference between ablation vs excision surgery (and why training matters)
    •The evolving role of ultrasound and MRI in diagnosing endometriosis
    •Why symptom severity doesn’t always match how much endometriosis is present
    •“Cross-sensitization,” and why pelvic organs can start acting like cranky roommates
    •How predictable flares can become learned patterns (and how to interrupt them)
    •Building a bigger “window of tolerance” so you’re not trapped in rigid rules to stay okay
    •Why vacations can flare some people and calm others (and what that suggests)
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    1 ora
  • Interstitial Cystitis, Vulvodynia, and Learning to Feel Safe Again: Landi’s Story

    Interstitial Cystitis, Vulvodynia, and Learning to Feel Safe Again: Landi’s Story
    Mar 3 2026
    In this episode of the IC You Podcast, I sit down with my client Landi to talk about her experience with interstitial cystitis, bladder pain, urgency, frequency, and burning that continued even when urine tests were negative. We talk about what happens when symptoms feel constant, why nervous system dysregulation can keep the cycle going, and how healing often looks slower and more layered than people expect.
    Landi shares how her life changed after years of fear, restrictive diet advice, and feeling dismissed, and what began to shift once she started addressing neuroplastic symptoms and learning how to create safety in her body again.

    What we talk about
    * How her symptoms began with recurring UTIs and later constant urgency, frequency, and burning without infection
    * Receiving an IC diagnosis and feeling lost after medications and instillations did not fully help
    * How online forums and the IC diet increased food fear and anxiety
    * Discovering nervous system dysregulation as a major root cause
    * The shift from feeling at war with her body to working with it
    * The role of community support, emotional processing, and self compassion
    * Nervous system tools she uses daily, including journal speak, somatic movement, breathwork, tapping, and safety statements
    * What progress looks like now as she returns to concerts, shopping, and line dancing
    * Why she started her own podcast, Surviving and Thriving
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    55 min
  • Stepping away from your chronic illness identity with Faith Ashenden

    Stepping away from your chronic illness identity with Faith Ashenden
    Feb 24 2026
    In this episode of IC You, I sit down with Faith Ashenden to talk about mind body healing, neuroplasticity, and how our response to symptoms can shape the healing process. Faith shares her story of living with chronic illness for a decade before discovering subconscious and nervous system work that helped her recover.

    We discuss her recent UTI experience and why it felt like a non event, which leads into a deeper conversation about fear, identity, and the meaning we attach to flares. Faith explains how thoughts influence neurochemicals in the body, why chronic stress keeps the nervous system stuck in survival mode, and why healing often requires stepping away from the “chronically ill” identity.

    We also share simple, realistic ways to support your nervous system day to day, from setting phone boundaries to focusing on presence rather than perfect routines. If you want to connect with Faith or explore her work, her links are in the episode description.
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    48 min