Anti-Myelin Society Podcast copertina

Anti-Myelin Society Podcast

Anti-Myelin Society Podcast

Di: Jojo Taty Brika
Ascolta gratuitamente

Offerte di stagione | 0,99 €/mese per i primi 3 mesi

A seguire 9,99 €/mese – si applicano condizioni. Puoi disdire mensilmente.
The Anti-Myelin Society Podcast features women of color from the Black and Latino communities who have been diagnosed with Multiple Sclerosis (MS). The hosts, Jojo, Taty, and Brika (introduced as new additional co-host in season II) share their experiences of navigating motherhood and building their careers, and health challenges while living with MS. In their discussions, they address various topics, including mental health, symptoms, and more.Jojo, Taty, Brika Scienze sociali
  • Smoldering MS
    Oct 8 2026

    Smoldering MS can continue beneath the surface, even when there are no obvious relapses or new lesions on an MRI. Jojo and Shabrika unpack what this lesser-known aspect of multiple sclerosis may mean for people whose symptoms keep changing, despite scans that appear stable. They explain smoldering, or chronic active, lesions; discuss progression independent of relapse activity (PIRA); and explore why symptoms don’t always line up neatly with MRI results. Drawing on their own experiences with MS, they talk about cognitive changes, fatigue, mobility challenges, feeling misunderstood, and the importance of advocating for yourself when you know something isn’t right. This candid conversation offers information, empathy, and a reminder that living with MS can look different for everyone. It’s not medical advice, but it may help you find new questions to bring to your healthcare team. In this episode:

    • What smoldering MS and chronic active lesions are
    • How MS may progress without an obvious relapse
    • Why a stable MRI doesn’t always reflect the full experience of symptoms
    • How cognitive changes and other invisible symptoms affect daily life
    • Why self-advocacy matters when navigating MS care
    Mostra di più Mostra meno
    1 ora e 5 min
  • Disability Savings Account
    Sep 24 2026

    Taty, Brika, and Jojo discuss ABLE savings accounts and how they may help people with disabilities protect their savings while receiving benefits. They also share honest stories about the financial challenges of living with MS, including medical bills, prescriptions, copays, and the everyday cost of staying healthy. Along the way, they bring plenty of humor, personal insight, and relatable conversations about chronic illness and financial survival.

    Mostra di più Mostra meno
    34 min
  • MS Treatment Around the world
    Sep 10 2026

    MS care is not one-size-fits-all. Jojo, Brika, and Taty discuss what happens when treatment, cost, insurance, and access collide—and why some patients are looking beyond their own country for care.They explore the realities of living with multiple sclerosis, including diagnosis fears, plasma exchange, vision loss, insurance barriers, medical costs, stem cell treatment, and the challenges of finding care that supports a full life. The conversation is candid, informative, and filled with plenty of honest laughs along the way.If you live with MS, support someone who does, or want to better understand how healthcare systems shape treatment options, this episode offers an unfiltered look at access, affordability, early intervention, and hope.

    Mostra di più Mostra meno
    52 min
adbl_web_anon_alc_button_suppression_t1
Ancora nessuna recensione