All About Raising HOH children as a HOH Parent- Episode 88 copertina

All About Raising HOH children as a HOH Parent- Episode 88

All About Raising HOH children as a HOH Parent- Episode 88

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 Read the transcript here This week on the All About Audiology podcast, Dr. Saperstein interviews Janna Cowper. Janna, who is hard of hearing, also has 2 daughters who are HoH themselves. Janna is the founder of Hardofhearingmama.com. She shares her own story as well as education posts on Instagram. Currently, Janna is studying at Gallaudet University with the goal of becoming a Deaf Mentor. This week on the All About Audiology podcast: 3:20 – When one is writing reports for clients/patients, the wording and labeling used in the introduction and summary to describe this child, really matter. 9:00 – When kids see their parents advocating for their needs, they can learn to advocate for themselves too. 12:00 – If accommodations are helping to support a child, do not take those accommodations and such access away. 21:00 – Medical professionals are experts in diagnoses, therapy, and best guidance; clients are the experts on the actual lived experiences of these diagnoses. 32:00 – Before speaking about milestones and goals, professionals can repeat parents’ requests so that the parents know that they are initially being heard. For more resources and research visit: All About Audiology Website All About Audiology Facebook group All About Audiology Instagram And the Prodana pay-it-forward platform here: https://prodana.org/practioner/lilach-saperstein/audiology-counseling–dr–lilach-saperstein Connect with Janna: Janna’s Instagram Page https://hardofhearingmama.com/ Mentioned in this episode: Dr. Michelle Hu @mama who hearsChloe TompkinsGallaudet Universityhttps://hardofhearingmama.com/affiliate-links/ Listen Next/Related Episodes The Ups and Downs of Tara’s Communication Journey – Episode 85All About navigating deaf identity with -Episode 86All About Advocacy Organizations – Episode 59 Transcript: Dr. Lilach Saperstein: Welcome back to the All About Audiology Podcast. I’m your host Dr. Lilach Saperstein, and on this show we talk about all things that are related to your actual experience and your life. Not just about hearing loss, audiograms, and devices, [and there are] so many tips and tricks we can share. But what I love to bring up for us also is this other part of the journey that’s about identity, and advocacy, and connection, and communication, [and] the stuff that actually matters, like how to talk to our kids and how to make them feel like they’re super amazing, important, confident. And also that we should feel that way as parents in general and as professionals as well. Today on the show, I’m so excited to be joined by Janna Cowper – hard of hearing mama. You for sure know her on Instagram or from hardofhearingmama.com. [She has] so many amazing posts and conversations, and I just love being in your sphere and seeing what you’re creating. So I’m really excited to dive in. Welcome, Janna to the show. Janna Cowper: Thank you so much. I’m really excited to be here. LS: So you, yourself are hard of hearing and you also have children who are in this same experience. So I’d love to hear how your experience growing up is different than what you’re providing for them. I think that contrast would be an interesting thing to go back [to reflect on]. Also looking into the history, how things have changed over time, but also will be hugely valuable to our audience. And as we all know, the majority of hard-of-hearing children and deaf children are born to hearing parents who don’t have any experience or understanding (certainly not personal experience for the most part). So I think it’ll be fascinating to hear, take it away. JC: That is a loaded question. There’s a lot in there. So I’m going to try and break it down. And I’ll just talk about some key differences between when I grew up and the age my children are growing up in. We are in different times of life, the world, centuries, the way stigmatas are seen are different, the way hearing loss and deafness is looked at is different. [And] even if there’s a lot that hasn’t changed, there’s a lot that has. And that includes technology and that includes awareness and education. And one of the key differences is just simply who you’re surrounded by. My hearing loss is hereditary; it’s on my mother’s side of my family. And it gets passed down. If I hadn’t passed it down, it would never be packed down. But if I do pass it down, my kid can potentially pass it down. I grew up in a time where, in my family chain, they were never really heard of a Deaf community. So there was always someone in the family with a hearing loss and so their view is [that] you need to blend in. You need to be like everybody else; wear your hair down [and] cover your hearing aids because you don’t want people to see it. You don’t want people to know [you have hearing aids]. So this was ingrained in me as a child. Now for my children growing up [I instill in them that] you are hard-of-hearing, you are ...
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